Tuesday, May 25, 2010

and so it goes

for those of you who see me in real life....yes, I'm glowing. No, I'm not pregnant, and no I haven't been tanning. It's actually a radioactive glow from all the x-rays I've had in the past 2 months. I think it's a sad day when I walk into the radiology office and the front desk girl knows my name before I even sign in. Something just so wrong about that.
So, yes, I'm glowing....and apparently they're 98% sure I have a rare disease called Primary Biliary Cirrhosis. There are two other overlapping diseases it could be but for now they're betting on this on. This is Vegas after all.
Am I freaked out? yes. Am I scared? pretty much. Am I glad it wasn't cancer? well, duh. When all is said and done, I'm ok with it. I mean, what choice do I have? I've certainly had my pity party and now that it's had a chance to sink in, I just shrug my shoulders and say, "oh well. could have been much, much worse."
I'm waiting to hear from the liver specialist in San Francisco and in the meantime I'm just thinkin' about stuff and wanting to travel and take pictures. HA! don't we all.
I started taking the one and only FDA, TSA, BSA, NBA approved drug for it so lets keep our fingers crossed that it works, ok?
I have a huge Williams syndrome research clinic coming up in two days and frankly, I'll be glad when it's all over and done with. They are exhausting to say the least and I just don't really have the energy for it this time around.
BUT....I actually have some time off right afterwards so I plan on taking pictures, baking cookies cakes and pies, and if I'm lucky, not doing much housework or grocery shopping.
So there you have it...my liver and I thank you for all your well wishes.

4 comments:

Penny Christine said...

I've been praying so hard...checking your blog pretty much constantly. Continued prayers. You are one amazing person. *Penny

Crystal said...

Thanks for updating us all. I've been praying for you daily. Keep the faith and keep your chin up.
Love you bunches.
Crystal

Amy said...

I appreciate your PO very much the picture with the article. Continues to refuel!!

Amanda Cheek said...

Hey Ruth.. Long time no see. I very rarely get to blog these days with an almost 2 year old running around making messes. I was sad to read about your PBC. I hope you are doing okay and I will be keeping you in my thoughts and prayers. I always think of you when I watch Cake Boss on TLC.. have you seen that show? I always think of you and say Ruth could do that! I miss you and your goodies! Take care of yourself!